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Campaign for Change

What can I do about the use of mesh?

If you have suffered complications from mesh surgery, or if you are simply concerned about the use of mesh to treat stress urinary incontinence or pelvic organ prolapse, there are a number of ways you can speak out and help to prevent harm from these medical devices happening to women.

(1) If you feel you did not receive adequate information on the risks of mesh surgery, or you are unhappy about the complications which resulted from your surgery or the follow up you received at your hospital, complain about your treatment .  If people don’t complain, nothing will change.

(2) If you are worried about the use of synthetic tape or mesh in pelvic surgery, you could write to the Director of Women’s Services at your hospital explaining your general concerns regarding polypropylene mesh.  You will find their name on the hospital’s website.

(3) Report your complications to MHRA so that the problem with mesh is highlighted and recorded.

(4) Report your complications to NPSA to keep them informed of problems with mesh.

(5) You could sign a petition on-line:

http://www.gopetition.com/petitions/the-medicine-health-regulator-united-kingdom-are-failin/signatures.html

http://www.thepetitionsite.com/1/an-urgent-review-is-required-on-the-medical-devices-tvt-tvto-tot-and-the-use-of-mesh-graft-for/

(6) Complete the on-line form for the National Institute of Clinical Excellence (NICE) requesting new guidelines on synthetic vaginal tapes which need to include information on risks and alternatives

(7) You may wish to send a letter or an email, explaining why you are concerned about the use and regulation of transvaginal mesh in pelvic surgery, to your local MP or visit one of their surgeries to discuss it in person.

(8) Write a letter or send an email highlighting your concerns to: Andrew Lansley, Secretary of State for Health, Department of Health, Richmond House, 79 Whitehall, London, SW1A 2NS  Email:  lansleya@parliament.uk

(9) Join a support group to get help and advice, discuss issues and support other women.

(10) If you wish to campaign for change in the way mesh implants are regulated or monitored, you could write to Mr Michael Rhodes, Medical Director of Devices, Medicines and Healthcare products Regulatory Agency (MHRA),151 Buckingham Palace Road, Victoria, London, SW1W 9SZ

(11) You could raise your concerns with professional organisations:

  • The British Association of Urological Surgeons Ltd (BAUS), 35-43 Lincoln’s Inn Fields, London, WC2A 3PE
  • British Society of Urogynaecology (BSUG), 27 Sussex Place, London, NW1 4RG
  • Royal College of Obstetricians and Gynaecologists (RCOG), 27 Sussex Place, Regent’s Park, London, NW1 4RG

(12) If you talk to friends, family members and colleagues about your personal experience, you may be surprised by how many people are affected by the subject.

The more people speak out, the more this issue will get the attention it deserves.

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Discussion

3 thoughts on “What can I do about the use of mesh?

  1. Your page includes clear options for lodging a concern, thank you.

    It may be worth noting that when making a complaint or just raising a concern, or taking it a step further in a formal complaint procedure, some parts of the complaint may have to go to different authorities. Icas or Seap would be able to advise. However, having to report to various places prolongs my own agonising recovery from an operation promoted as a “minimally invasive, day case procedure” !!

    My hint is: get your medical records as soon as you can when you realize that something is wrong. You can talk to someone and see your records in hospital – you have the right to ask questions about your treatment and someone is required to sit with you and explain the details to you. Keep a diary of your hospital stay or get a friend or relative to do that for you and then if you need to impart your concerns or also your praise.

    Posted by I H | April 15, 2012, 7:22 am
  2. Thanks for your comments. I hope you get a good response from your complaint.

    If you are worried about the continued use of mesh in pelvic surgery, you can write to one of the authorities mentioned above to bring this issue to their attention. Recent figures revealing the number of people having surgery to remedy their mesh problems confirm that this is an increasing problem which is quite likely underreported in the studies.

    Posted by tvtinfo | April 15, 2012, 9:54 am
  3. This page is especially good as it sets out all the steps sufferers can follow. It is easy to print and keep as a target sheet. Thank you.

    Posted by I H | April 16, 2012, 10:15 am

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