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Worried about TVT tape?

I am setting up this blog to help women who are worried and need information following surgery to have the TVT (or other synthetic sub-urethral sling) implanted.

I also hope to provide advice and information to women considering having this surgery.

I’m hoping to post on a number of topics related to mesh surgery and complications, such as: getting help and support; mesh complications; mesh erosion; bladder emptying difficulties; mesh division and removal; reporting your complications etc.

I’m new to blogging so please bear with me – it may take me a while to get this site up and running..



15 thoughts on “Worried about TVT tape?

  1. I had tvt mesh implant just over 5 weeks ago,I got a cancelationI ,had been seeing uro of on since 2005 ,was told I would be a new woman after this,was in excruciating pain during the opp so much so that when the metal hooks were pushed through the abdominal wall my body went into shock coz I felt them going through. My whole body shook my teeth chattered,they stopped I was covered with a hot blanket from my neck to my stomach,I felt I couldn’t move or speak but could open my eyes I moved my eyes what seemed like slow motion,I could hear I was told to breath deeply by a woman who got hold of my hand I tried to squeeze her hand to say stop I did as I was told and my body stopped shaking,at that point I did not want to go ahead with the op but was unable to speak.they continued pushing the hooks through my abdominal wall the PAIN my god the PAIN don’t know what happened after that the next thing I remember was the trolley moving that made me aware what was going on again.I was took into recovery where I came too.the surgeon that did the opp came to room to say the opp went well and I would be a new woman. I was speechless even though I could speak at this point,the audacity of these people,I was shocked and still am.i was then took to a pod,I was given food and drinks then told I needed to try for a wee,as soon as my feed touched the floor I had excruciating pain in my right side and the area where the hooks went through.I told the nurse and was given more pain killers which did not touch the pain.her only concern was me getting a wee. I managed that in agony only to find out that half of the wee was left inside of me,time was ticking I was the last patent there they wanted to shut shop.i could barely stand and all the nurse was interested in was to teach me how to self catheterise.I had to put one foot on the chair one hand holding a mirror while my other hand put a catheter in whilst covered in blood. I couldn’t do it I said my husband would do it for me I needed to get out of there I was cracking up,she marched me to the main doors I couldn’t keep up with her she kept looking back holding the doors I could only do dolly steps then of she went leaving me outside the main doors I saw my husband walking towards me I collapsed in his arms begged him to take me home.Since then bladder emptying,wee stream slow stop start,uti,3 lots antibiotics ,period like cramp all the time,random stabbing insides the Virginia,feeling sick most the time,of food can only eat little bits can’t bare my stomach to be full,stomach looks like 6 months pregnant,sweat,temp running up to 39,never away from gp,he sent me back to gyne who offered to take out the middle of the tape basically because that’s all he’s qualified to do,I asked for a second opinion. I was refuted to a uro who basically told me to go away and give it a chance,come back in 6 months if things haven’t settled men time take tablets and antibiotics ,I am so scared I’ve started to read all about tvt mesh on the Internet ,erosion and the damage this tape can do and the economical truths the medical profession give us. I desperately need someone to talk to,I’m having panic attacks now and driving my husband up the wall bless him he’s survived kidney cancer and been to hell and back for years, sorry this is so long needed to get some of it out my head. Does any one know how much it will cost to go private to get this bomb out of me and where to go,I’ll debt it if I have to.

    Posted by Denise | August 25, 2013, 6:41 pm
  2. Denise, this describes an experience worse than the worst nightmare. I knew that the TVT op is sometimes put in under local anaesthetic but to be in your situation just beggars belief (mine was at least done under general anaesthetic – that’s the only good thing I can say about my procedure). You poor woman. Yes – there are many of us who have found that we have been lied to.a

    I insisted on a second opinion when it was immediately apparent that things were damaging me, I went through the Patient Advice Liaison people who are in all English hospitals – not all UK though. I kept up a steady stream of insistent, polite, complaint which was graphic for the PALs women and turned it into ‘what would you do if you were me?’ to encourage speed. I was lucky – my second opinion came from one of the few ‘aware” urogynaecologists who both felt the tape and listened, and then took action. You will see Natalia Price mentioned many times on this site as she has ‘rescued’ about 40 women from TVT misery. She and Suzy Elneil seem to be the only UK surgeons who can help but I don’t know what it would cost privately. many women get referred by their GP without paying so you should start there, although to speed up the process, they pay for the initial consultation – £200 or so – and then go on the NHS waiting list for removal.

    Look up Oxford Gynaecology and you will find contact details if you want to see Natalia privately initially. Others who write on this forum can tell you how to get onto Suzy Elneil’s list – she is in London.

    I do feel for you and for your husband. It’s a crime what is being done to us.


    Posted by Liz RH | August 25, 2013, 8:22 pm
  3. Denise, so sorry to hear of your dreadful experience with mesh surgery.

    Sadly, I have heard of women who have suffered very strong pain reactions very soon after TVT surgery.

    Posted by tvtinfo | August 29, 2013, 9:03 pm
  4. Liz, thanks for your input.

    Posted by tvtinfo | August 29, 2013, 9:05 pm
  5. OMG I don’t believe that this was done to you it’s hard enough waking up after the surgery but to even think about someone going through this makes me cringe. I too am having real bad pain, my tvt tape perforated through my cervic’s twice and I ended up with a complete hysterectomy now I am going through a surgical menopause an am suffering extreme pain, pins and needles down my legs dizziness, no immune system and the feeling that I am going mad. I am trying to cope but not doing so well at it. My little girl needs me as she has special needs so I need to get help ASAP can anyone advise me. God Bless.Merry Christmas to you all

    Posted by Lynne | December 8, 2013, 11:06 pm
  6. I had the Tvt mesh Inplanted 8 years ago now.I have had no problems & it really as worked for me as I was really bad with incontinance .But I am getting really worried & frightened after reading all the papers & published items in news papers etc.I also have a friend that also had to have the mesh removed as she was experiencing so much pain.Will the mesh eventually come away in my body?..What do I do now?.Should they not scan us all to find out????

    Posted by Julie | November 23, 2017, 2:45 pm
  7. I had the tvt in 2013 (in the uk) and I haven’t had any bad side effects, it has done what they said it would. But now I’m concerned after so many people having problems, I don’t know what to do or if I should do anything??

    Posted by Manda | December 11, 2017, 11:17 pm
  8. Hi Manda, I would not do anything except just be aware of the possible complications so you can get advice if you have any problems in the future. Hopefully you will not have any problems.

    Posted by tvtinfo | December 11, 2017, 11:19 pm
  9. Does anyone have success stories with TVT mesh? I am schedule in 2 weeks for surgery, and am now on the fence after doing more research. Does anyone know of
    a page with recent statistics?

    Posted by melissa | January 22, 2018, 2:14 pm
  10. I had mine done about 5 years ago and I have had no issues with it. It was the best thing I did as I was limited to what I could do. I couldn’t cough,sneeze, trip up, jog, lift my baby niece or nephew or be startled without leaking. Now I am able to do all those and more.

    Posted by Manda Davies | January 28, 2018, 11:17 am
  11. I am due to have TVT for stress incontinence on 9th February. I am worried sick and just do not know what to do for the best, I put it off 10 years ago for other personal reasons. My problems have not improved and I now worry if I put surgery off again I will never get it done. I have frightened myself to bits with all the failure horror stories, and yet I know so many women have had successful operations, I can’t sleep at night worrying what to do for the best.

    Posted by Maggie | January 31, 2018, 1:24 pm
  12. My friend had it done the same tone as me, and about a year keyed another friend had it done. The only issue the both had was a water infection just after the op, the had antibiotics straight away and neither has had any other issues. I can understand how you feel though, with all the news in about how badly women have suffered I have been concerned but I have had no symptoms at all everything is good and I am glad I had it done as I can do so much more now without worrying about leaks. Hope this helps a little.

    Posted by Manda Davies | January 31, 2018, 4:19 pm
  13. Hi everyone,I have been using this site for 4 or more years and have found it a great help,please any one going down the mesh route do think very very carefully about it all as I to was very pleased with the results for a year or two post op but give me my time back and I would far rather put up with incontinence than all the pain I have to put up with every day of my life now ,despite taking very high doses of pain meds
    Hello to Liz and to Ingrid hope you are both ok?
    Luv to you all

    Posted by carole jarman | February 25, 2018, 11:23 am
  14. Yes I am worried about my TVT operation performed 6 years ago. I have had an MRI scan, on my insistence, in April and had to request the result from the surgeon. A brief response stated that ‘the TVT tape appears to be in the correct position’. Should I be taking further action.

    Posted by Loraine Gelgon | October 13, 2018, 8:31 am
  15. I appear to be an exception to all of the above. I had a TVT op in early 2002 and only now in 2019 am I beginning to have some side effects. I feel that the tape has fallen and causes me to run to the loo constantly just like a UTI and also some passing of blood. A small course of antibiotics help but it would be great if they could put it back into position. Back in 2002 immediately after the operation I knew instantly that I had been sorted and have been absolutely fine until now. The feelings of UTIs started in late 2018 and I can feel that something has fallen. Any suggestions?

    Posted by Maureen Galloway | February 13, 2019, 12:56 pm

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